I don’t know whether to laugh or cry?! Although I have actually done both… with a little added sarcasm…
OK so I got the Freedom of Information and Data Protection Acts wrong-
but I do know that when I asked for my health records last year and for Glenlyn to include the ‘Significant Events Analysis Meeting’ (SEAM) about my case, I got my records back but the SEAM part was ignored.
Several phone calls and months later and still we were ignored-
but I do know that when I asked for my health records last year and for Glenlyn to include the ‘Significant Events Analysis Meeting’ (SEAM) about my case, I got my records back but the SEAM part was ignored.
Several phone calls and months later and still we were ignored-
Deep breath…
So… one part is-
Next-
The only Doctor this letter said anything specific about was the first Dr, who I agree did what was “appropriate”-
The only Doctor this letter said anything specific about was the first Dr, who I agree did what was “appropriate”-
On this supposed SEAM letter it says:
“A Significant Event Analysis Meeting like this is a standard medical way to learn from events where there have been negative outcomes or a patient has concerns regarding their care. Involved parties are encouraged to consider both things that went well and those that could have been done better. We have looked back through both your complaint letters at your clinical records, investigation results and the specialist letters. The doctors have openly reflected on their notes and decision making in the light of your subsequent diagnosis.
Unanimously we are very sorry that you and your family are having to endure this condition and the treatment associated with it. We acknowledge that you most likely already had the Hemangioblastoma to some degree when you first presented. We would have liked to have reached the diagnosis sooner in the hope that this might have limited the impact on you and we are sorry this did not happen”
Neither of the comments about Dr Vo or Dr Milne say anything specific as to what Glenlyn’s findings were about them…
do they really think I believe this was the ONLY thing they recorded about this Significant Events Analysis Meeting? Really? Even though my letter was written 19 days after the meeting, they remembered it all? Wow! I want some of those memory pills…
Also when I have been re
reading these letters again, I have now seen some contradictions and
comments that ‘incriminate’ the doctors far more that I realised or
wrote about in my first letters to either the GP surgery or the health
ombudsman. Brain surgery definitely takes its time to heal from, and it
seems no one cares one bit about supporting me in my complaint.
Plus they apparently failed
to complete a report into what they said… how very convenient! The most
they can probably now get is fined a few £ for not following the correct
procedure-
But a fine for not doing
paperwork correctly is possibly better that having to pay out for
admitting they messed up if I see the report of the meeting. Well unless
they can put you in jail as they can for not doing your council tax
right…
I am going to add my comments to this bullshit:
A
Significant Event Analysis Meeting like this is a standard medical way
to learn from events where there have been negative outcomes or a
patient has concerns regarding their care. where
they fucked up and they know it, but have been subject to an official
complaint from a patient who has nothing better to do, when their health
is already suffering, than try and get their head together and write to
complain . And hey there is nothing better than a patient who has just
had brain surgery-
Involved parties are encouraged to consider both things that went well they
didn’t have to pay for an MRI out of their budget, or even a
prescription … And well they didn’t kill me, and I didn't have a
stroke-
and those that could have been done better. well
you did finally write a referral letter…only 3 appointments late and
non urgent, when the very same issue was deemed urgent by a different
doctor a few months earlier. So you did ‘do your job’ to the best of
your (somewhat limited) knowledge …
We have looked back through both your complaint letters, and
replied ignoring or twisting the comments written in your clinical
records of me, as well as lied about things where you know you will be
found guilty
investigation results and the specialist letters. where
the doctors failed to follow the advice of the specialist and thought
it appropriate to do nothing, even when the causes of my symptoms hadn’t
been found…oh and I almost forgot-
The doctors have openly reflected on their notes and decision making in the light of your subsequent diagnosis. I bet… and they thought ‘oh shit!’… I hope it gives them many sleepless nights-
Unanimously we are very sorry that you and your family are having to endure this condition I am not stupid -
and the treatment associated with it.
funny that you didn’t even manage to take my staples out after surgery
then?… even with 5 days notice… and even after the day I sent the
private scan results in showing a fuck off great lump in my head and Dr
Strickland called me saying ‘let me know if there is anything we can
do..’ … actions …um …speak louder than what?? … oh words…that's it…
We acknowledge that you most likely already had the Hemangioblastoma to some degree when you first presented. Some
fucking degree?? What like 359 fucking degrees of it you fucking
morons… Hemangioblastoma’s on any medical literature are SLOW growing, I
had this bloody (sic) thing years… what was also showing when I
presented was the hydrocephalus where the tumour was causing fluid on my
brain, yet you failed to note that my dizziness and head pains got
worse each time I sneezed, coughed or strained-
We would have liked to have reached the diagnosis sooner …liked.
I’d like it if you would have the decency to admit you are sorry and
fucked up by paying me back the private costs of an MRI and a
contribution to the extra pain you put me through. The only reason you’d
have liked it too is so that you couldn’t be found guilty of this.
in the hope that this might have limited the impact on you I guess a couple of months less sitting on the sofa feeling dizzy 24/7 might have helped many things…
and we are sorry this did not happen” …yes
I bet. Well I don’t want to reduce your 100K or so income do I? … I
have no idea how you manage to survive on it, especially considering it
takes weeks to see you and I cant even get you to sign your own letters
you have written to me, you must be so busy… maybe you would like to
swap and manage on about 11K since we lost half our customers while I
was ill for so long and my husband had to care for me. I am sure I could
probably do just a good job as you anyway…after all what is NICE, NCBI,
GP notebook and the NHS website for…
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